Sorry for the delay in not writing sooner, it has been a case of manic times decorating the guest room followed by pure fatigue the following day. As you read in my previous blog my daughter was raising money for a small charity researching our medical condition and she raised over £800 amazing so thank …
Tag Archives: unmethylated
Rest Period
Hello fellow GB downhillers. firstly I’d like to thank those of you who have contributed towards my amazing daughter’s birthday fundraiser which is raising money for a UK glioblastoma charity which specifically funds research into our shit cancer. Please consider donating here: https://tinyurl.com/yx8u99zb the charity is called Headcase Cancer Trust and their website is headscase.org …
Ongoing saga
Hi people. Had my bloods taken on thursday just gone, guess what? Yep they had dropped again, I am now reading 37 on my platelets, so have another vampire day tomorrow at 9 am UK time. The doctor has said there is nothing to worry about at the moment,(easy for him to say he has …
Last day of first phase
Friday 5th Oct Day 30 and appointment is 4pm this afternoon UK time, woowee!!!!! They have said I can have my mask if I would like it, Hell yes!!!! Wearing it for Halloween, but declining to ring the bell (don’t want to tempt fate, after all this is the first phase). After the scan I …
Day 29
Morning/evening/night (delete as appropriate for your time zone) fellow GB sledders. I have 2 sessions left and today is Thursday so that means Vampire day (yes bloods to be taken), God I hate this bit, roll on my month off. How am I feeling? I have been having a bit of pain on the left-hand …
Day 18
Another session of treatment today, been given stupid ‘o’clock (6:10pm). I suppose it’s my own fault for requesting afternoon appointments, but when does that time equate to an afternoon? My hair has started to fall out where the radiotherapy is targeting so I have shaved the more hirsute side and gone a bit Peaky Blinders, …
Tiger tiger burning bright
I am giving a shout out to another warrior who has been randomly picked on by cancer. You may hae read, Angus McDonald, a Hull City player, has recently been diagnosed with early stages of bowel cancer. I was born in Hull so there is a tiger always in my heart. Even though I have …
Treatment begins
So I started the radio/chemo treatment 2 days ago and don’t I feel any different ccurrentky but I know it’s stikkearly days with many more sessions to go. My treatment started on Tuesday by receiving the wrong information as to where to go for my anti-sickness tablet. Turns out too many chefs not enough on …
Day out
Had a fantastic day out on Saturday at Lichfield Food Festival. Amazing sights, sounds and smells. I was salivating as soon as I got out of the car (and no I was not driving before you ask lol). It was crowded and intoxicating but hey it was brilliant, the sun was shining and I loved …
Treatment
Firstly I would like to thank those people who have communicated with me via Twitter and you are right, the questions asked defy logic and my patience time and time again. This enemy within us effects not just the target host but the support network we have around us and it is ongoing, so every …
Brain Man 