We are now heading into the Spartans Battle of Thermopylae and as per my previous blog post the writing is on the wall. Unfortunately the commander (yours truly) received the news that hospice care is now the only thing required and chemo has ceased to be an option so I am in palliative care. Support …
Tag Archives: treatment
Happy 2023
Happy New Year fellow downhillers. I hope everyone had a fantastic Christmas and New year. I enjoyed a lovely time over Christmas, relaxing with my family. On 29th December I had an MRI and saw my consultant yesterday for the results. It wasn’t the best of news. The consultant informed me I have further progression. …
The life of Brian
Apologies for the delay in posting. I hope everyone is OK 👌. So what has happened to me since the last chapter. I have spent more time in A&E for two further transfusions as I was struggling for breath again. Chemo has been postponed as the consultant and nurse agreed the chemotherapy was affecting my …
How am I?
Well my chemo has been completed and does it fill me with renewed vigor. NO. I feel like I have a permanent head cold. I can feel the beating of my heart in my ears and am struggling with shortage of breath continuously. Does anyone else experience this? If you don’t, do not worry it …
Still no chemo
Afternoon fellow downhillers. I trust you are enjoying the sun but still taking care. I had a call from my doctor yesterday asking how I was. I thought read my notes instead of asking for my opinion. He hasnt seen me since the universe was created (slight exaggeration there it was actually 10 minutes after …
More Transfusions
Where am I upto in regards to treatment and health. Well I had my last chemo the end of April and was told to chill. Treatment wise aftereffects I was lethargic and constipated (I know some will say I was already full of s’,t). Mind you I have had a test to check for bowel …
Back on Chemo
Morning everyone. Are we all ready to celebrate 🍾 the Royal weekend with a street party or a more intimate gathering. We are having a garden party with Pimms (I know can’t get much posher than a jug of Pimms). Lol. As it says in the headline I started my chemo last Friday after my …
Latest update
Good morning/afternoon/evening depending where on this planet you are reading this. I hope everyone is OK. It was awful to hear of the passing of Tom Parker from the band The Wanted with our shit condition. He was far too young (33) to be taken and his drive to try and make people more aware …
Latest news
I have just had a routine call call from my oncology nurse to catch up (you know the “how are you feeling questions”). I explained I was having my bloods taken today and if OK will start my chemo on Friday. I then enquired if she had the results of my last MRI as I …
Saga
Hi fellow downhillers. How am I feeling I hear you say. Well if you haven’t posed the question I will tell you anyway. What a week. Last Monday I had my bloods taken once again, prior to my chemo yesterday. Unfortunately due to my levels chemo was postponed. I was told I required a blood …
Brain Man 