Thunderbirds Are not exactly Go but engines purring

Hello viewers. Well I had my MRI last week and the good news is Brian is stable again. 🍾 he went a bit off piste at one point. My oncology nurse confirmed he was back on track yesterday on a call. I got her to check again to be sure, which she did. So in …

Happy Star Wars Day

No I haven’t taken leave of my senses. Today is 4th of May, hence May the 4th be with you. I know lame but what the heck. Last few weeks have been up and down like a roller coaster in terms of Brian and the NHS.  I had my bloods taken on 20th of last …

Latest update

Good morning/afternoon/evening depending where on this planet you are reading this. I hope everyone is OK. It was awful to hear of the passing of Tom Parker from the band The Wanted with our shit condition. He was far too young (33) to be taken and his drive to try and make people more aware …

Latest news

I have just had a routine call call from my oncology nurse to catch up  (you know the “how are you feeling questions”). I explained I was having my bloods taken today and if OK will start my chemo on Friday. I then enquired if she had the results of my last MRI as I …

November and still going

Hi everyone. I hope everyone is feeling 👍. Is it me or is it bloody cold, (unless you are reading this in the South Pacific or somewhere else as hot). In which case I am jealous. I have just finished my second course of chemo, injection followed by tablets for 10 days, no drinking of …

Update

Morning fellow downhillers. Today was supposed to be the start of my chemotherapy treatment unfortunately the hospital rang to say the results of my blood test showed my HB and neutrophils are slightly low so they cannot proceed. As you are aware I had my bloods last Monday and also a blood match for my …

Return of the Crap

Hi fellow downhills. I hope everyone is well. Latest update, I had my MRI last Friday and my bloods were taken on the Monday just gone and I saw my consultant yesterday. The news is the tumour has spread. My chemo hasn’t worked so they are preparing a new course of treatment of chemotherapy through …

Confused.com

2 weeks ago I was clear in my mind what was going on regarding my ongoing treatment. Now I am befuddled. The consultant has taken me off dexamethazone and put me on hydrocortisone, one tablet in the morning and half a tablet on an evening. I have been on it for about a week. He …

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