Morning/afternoon/evening depending on what time you are reading this my fellow downhillers. I had my hospital appointment yesterday for a catch up to see how I was feeling with my nurse and she said would I like to know the results of my last MRI scan (I know it is that scary time), well she …
Tag Archives: gbm4
Happy festive greetings
I hope everyone had a fantastic christmas with lots of rest and not to much trauma in between. Apologies for not writing earlier it’s been manic with blood tests (in fact at hospital now to have bloods taken), more bruising I bet. We had a fantastic time in York cold but amazing 5 Christmas markets. …
Unbelievable
You could not write this fellow warriors. A letter arrived from the QE hospital on Monday. My angiogram was done in September if you remember, and yet only now are they advising of an appointment for 9th December (the day before we go to York)…which only came about as our lass has been calling and …
Meeting with doctor
Yesterday was my meeting with my doctor regarding my MRI scan the day before. I took our lass, my son and mother in law as hospital buddies. I had to have my bloods taken first to check my platelets. Both arms are bruised once more as the nurse struggled to get a vein. Luckily she …
MRI Scan
I had my meeting with my boss, it was short and sweet but dont you get pissed off when people say you look really well lol. Yesterday was my MRI scan and yes I was nervous about it, didnt help when I had a canulla inserted for the dye check and it left a bruise, …
Apologies for delay in blogging
Sorry for the delay in not writing sooner, it has been a case of manic times decorating the guest room followed by pure fatigue the following day. As you read in my previous blog my daughter was raising money for a small charity researching our medical condition and she raised over £800 amazing so thank …
Rest Period
Hello fellow GB downhillers. firstly I’d like to thank those of you who have contributed towards my amazing daughter’s birthday fundraiser which is raising money for a UK glioblastoma charity which specifically funds research into our shit cancer. Please consider donating here: https://tinyurl.com/yx8u99zb the charity is called Headcase Cancer Trust and their website is headscase.org …
Ongoing saga
Hi people. Had my bloods taken on thursday just gone, guess what? Yep they had dropped again, I am now reading 37 on my platelets, so have another vampire day tomorrow at 9 am UK time. The doctor has said there is nothing to worry about at the moment,(easy for him to say he has …
Latest news
Well Oxford is back on after having my bloods taken yesterday to check my platelets after they had dropped from 100 which is the normal to 77 last Thursday, then a subsequent blood test showed a further decrease to 43, luckily a further test revealed they had stabilized at 43, otherwise if they had dropped …
Upto date news
Hi fellow GB downhillers, I know I am supposed to be on my month of R&R, however I had a call from the radiotherapy department yesterday and the on-call doctor there said my platelets were low so need monitoring so could I arrange an appointment with my GP to have my bloods taken on a …
Brain Man 