2 weeks ago I was clear in my mind what was going on regarding my ongoing treatment. Now I am befuddled. The consultant has taken me off dexamethazone and put me on hydrocortisone, one tablet in the morning and half a tablet on an evening. I have been on it for about a week. He …
Tag Archives: Dexamethasone
2 years ago today
Hello everyone. I hope you⁸ are all OK? Well it is 2 years ago today since I had my seizure and was rushed to hospital to be told I had a brain 🧠 tumour. Later that night I was transferred to Birmingham QE hospital to be told they didn’t think it was a tumour but …
Another day in paradise
Good morning fellow downhillers. I know it’s been a while time since you have heard from me. I hope is everyone is keeping well? We have all had our second dose of vaccines so are tickety boo. Restrictions are slowly lifting so normality appears to be reappearing slowly. Yippee I have my MRI 2nd week …
Consultation
Hi everyone. I hope you are all ok? Yesterday I had my phone conversation with my consultant, he said Brian is stable. 😃😃😃. He asked how long I had been on Dexamethasone and i said that is nearly 2 years since I was put on it and the consultant advised he would like to swap …
No New News on Vaccine
Good morning/evening or whatever time it is in your area. Another day of tedium for everyone I guess. I have not yet received any notification of my vaccine jab to date. My daughter, one of my sister’s in law and mother in law have had their jabs. I did get a letter from the hospital …
Christmas cheer
Good afternoon fellow downhillers. My consultant has just rang to say my MRI scan carried out last week shows no change it is stable. I am so chuffed, admit was worried as head had been hurting recently but possibly due to my medication. My consultant says he will book new appointment for March and then …
Good news
Hi fellow GB downhillers. Well the nurse rang me yesterday and said there has been no change on my last MRI and no further signs so chuffed with that. Next MRI is sometime in September. I have also taken up painting (commissions taken), but only paint blue sky and sea so dont expect a Vermeer …
Rest Period
Hello fellow GB downhillers. firstly I’d like to thank those of you who have contributed towards my amazing daughter’s birthday fundraiser which is raising money for a UK glioblastoma charity which specifically funds research into our shit cancer. Please consider donating here: https://tinyurl.com/yx8u99zb the charity is called Headcase Cancer Trust and their website is headscase.org …
Day out
Had a fantastic day out on Saturday at Lichfield Food Festival. Amazing sights, sounds and smells. I was salivating as soon as I got out of the car (and no I was not driving before you ask lol). It was crowded and intoxicating but hey it was brilliant, the sun was shining and I loved …
Latest update
I have a CT scan for my heart booked for the middle of September and an appointment with the oncologist on 14 August at 2 separate hospitals. My nights are still punctuated by waking at 3-3:30am. Are others going through this? Please let me know. I am finding myself becoming irrational and angry whereas before …
Brain Man 