MRI Scan

I had my meeting with my boss, it was short and sweet but dont you get pissed off when people say you look really well lol. Yesterday was my MRI scan and yes I was nervous about it, didnt help when I had a canulla inserted for the dye check and it left a bruise, …

Apologies for delay in blogging

Sorry for the delay in not writing sooner, it has been a case of manic times decorating the guest room followed by pure fatigue the following day. As you read in my previous blog my daughter was raising money for a small charity researching our medical condition and she raised over £800 amazing so thank …

Rest Period

Hello fellow GB downhillers. firstly I’d like to thank those of you who have contributed towards my amazing daughter’s birthday fundraiser which is raising money for a UK glioblastoma charity which specifically funds research into our shit cancer. Please consider donating here: https://tinyurl.com/yx8u99zb the charity is called Headcase Cancer Trust and their website is headscase.org …

Ongoing saga

Hi people. Had my bloods taken on thursday just gone, guess what? Yep they had dropped again, I am now reading 37 on my platelets, so have another vampire day tomorrow at 9 am UK time. The doctor has said there is nothing to worry about at the moment,(easy for him to say he has …

Latest news

Well Oxford is back on after having my bloods taken yesterday to check my platelets after they had dropped from 100 which is the normal to 77 last Thursday, then a subsequent blood test showed a further decrease to 43, luckily a further test revealed they had stabilized at 43, otherwise if they had dropped …

Upto date news

Hi fellow GB downhillers, I know I am supposed to be on my month of R&R, however I had a call from the radiotherapy department yesterday and the on-call doctor there said my platelets were low so need monitoring so could I arrange an appointment with my GP to have my bloods taken on a …

Last day of first phase

Friday 5th Oct Day 30 and appointment is 4pm this afternoon UK time, woowee!!!!! They have said I can have my mask if I would like it, Hell yes!!!! Wearing it for Halloween, but declining to ring the bell (don’t want to tempt fate, after all this is the first phase). After the scan I …

Day 29

Morning/evening/night (delete as appropriate for your time zone) fellow GB sledders. I have 2 sessions left and today is Thursday so that means Vampire day (yes bloods to be taken), God I hate this bit, roll on my month off. How am I feeling? I have been having a bit of pain on the left-hand …

One week to go

Five weeks down and one week to go for my radio/chemo treatment. It seems to have gone by quickly so far. Appointment slots have been up and down like a fiddlers elbow, with some early and I mean early (6.30 in a morning and the opposite end of the spectrum with the same time on …

Week 5

I hope everyone had a nice weekend, mine was perfect as my appointment on the Friday for my radio/chemo treatment was 12.30 leaving us time to just do what we wanted, so my wife and I went into town as they have a French style bar/restaurant called ‘The Parisian’ (tres chic). We sat there drinking …

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