Hi fellow downhillers, hope you are all well. I have had a cough for past couple of days but apart from that have felt ok, so fingers crossed it stays like that. I have a hospital appointment on either Monday or Tuesday (my choice nurse has told me) for my bloods, then have a meeting …
Category Archives: days out
2020
Sorry haven’t posted since the end of last year been hectic as you can imagine. News wise, I haven’t started my next course of chemo yet as my platelets are low so having blood tests on a weekly basis. In fact I have another blood test tomorrow. Had my MRI scan yesterday, still waiting for …
Happy festive greetings
I hope everyone had a fantastic christmas with lots of rest and not to much trauma in between. Apologies for not writing earlier it’s been manic with blood tests (in fact at hospital now to have bloods taken), more bruising I bet. We had a fantastic time in York cold but amazing 5 Christmas markets. …
Meeting with doctor
Yesterday was my meeting with my doctor regarding my MRI scan the day before. I took our lass, my son and mother in law as hospital buddies. I had to have my bloods taken first to check my platelets. Both arms are bruised once more as the nurse struggled to get a vein. Luckily she …
Apologies for delay in blogging
Sorry for the delay in not writing sooner, it has been a case of manic times decorating the guest room followed by pure fatigue the following day. As you read in my previous blog my daughter was raising money for a small charity researching our medical condition and she raised over £800 amazing so thank …
Ongoing saga
Hi people. Had my bloods taken on thursday just gone, guess what? Yep they had dropped again, I am now reading 37 on my platelets, so have another vampire day tomorrow at 9 am UK time. The doctor has said there is nothing to worry about at the moment,(easy for him to say he has …
Latest news
Well Oxford is back on after having my bloods taken yesterday to check my platelets after they had dropped from 100 which is the normal to 77 last Thursday, then a subsequent blood test showed a further decrease to 43, luckily a further test revealed they had stabilized at 43, otherwise if they had dropped …
Upto date news
Hi fellow GB downhillers, I know I am supposed to be on my month of R&R, however I had a call from the radiotherapy department yesterday and the on-call doctor there said my platelets were low so need monitoring so could I arrange an appointment with my GP to have my bloods taken on a …
Last day of first phase
Friday 5th Oct Day 30 and appointment is 4pm this afternoon UK time, woowee!!!!! They have said I can have my mask if I would like it, Hell yes!!!! Wearing it for Halloween, but declining to ring the bell (don’t want to tempt fate, after all this is the first phase). After the scan I …
Day 29
Morning/evening/night (delete as appropriate for your time zone) fellow GB sledders. I have 2 sessions left and today is Thursday so that means Vampire day (yes bloods to be taken), God I hate this bit, roll on my month off. How am I feeling? I have been having a bit of pain on the left-hand …
Brain Man 