Hello fellow GB downhillers. firstly I’d like to thank those of you who have contributed towards my amazing daughter’s birthday fundraiser which is raising money for a UK glioblastoma charity which specifically funds research into our shit cancer. Please consider donating here: https://tinyurl.com/yx8u99zb the charity is called Headcase Cancer Trust and their website is headscase.org …
Author Archives: brainman2019
Ongoing saga
Hi people. Had my bloods taken on thursday just gone, guess what? Yep they had dropped again, I am now reading 37 on my platelets, so have another vampire day tomorrow at 9 am UK time. The doctor has said there is nothing to worry about at the moment,(easy for him to say he has …
Latest news
Well Oxford is back on after having my bloods taken yesterday to check my platelets after they had dropped from 100 which is the normal to 77 last Thursday, then a subsequent blood test showed a further decrease to 43, luckily a further test revealed they had stabilized at 43, otherwise if they had dropped …
Upto date news
Hi fellow GB downhillers, I know I am supposed to be on my month of R&R, however I had a call from the radiotherapy department yesterday and the on-call doctor there said my platelets were low so need monitoring so could I arrange an appointment with my GP to have my bloods taken on a …
Last day of first phase
Friday 5th Oct Day 30 and appointment is 4pm this afternoon UK time, woowee!!!!! They have said I can have my mask if I would like it, Hell yes!!!! Wearing it for Halloween, but declining to ring the bell (don’t want to tempt fate, after all this is the first phase). After the scan I …
Day 29
Morning/evening/night (delete as appropriate for your time zone) fellow GB sledders. I have 2 sessions left and today is Thursday so that means Vampire day (yes bloods to be taken), God I hate this bit, roll on my month off. How am I feeling? I have been having a bit of pain on the left-hand …
One week to go
Five weeks down and one week to go for my radio/chemo treatment. It seems to have gone by quickly so far. Appointment slots have been up and down like a fiddlers elbow, with some early and I mean early (6.30 in a morning and the opposite end of the spectrum with the same time on …
Week 5
I hope everyone had a nice weekend, mine was perfect as my appointment on the Friday for my radio/chemo treatment was 12.30 leaving us time to just do what we wanted, so my wife and I went into town as they have a French style bar/restaurant called ‘The Parisian’ (tres chic). We sat there drinking …
Day 20
Well nearly 4 weeks down and 2 to go. Thursday I had my bloods done again, (I know, it comes round so quickly every Thursday). So same nurse as last time and I explained to her I do not like plasters, so what does she try and do? Put a plaster on it!! When I …
Day 18
Another session of treatment today, been given stupid ‘o’clock (6:10pm). I suppose it’s my own fault for requesting afternoon appointments, but when does that time equate to an afternoon? My hair has started to fall out where the radiotherapy is targeting so I have shaved the more hirsute side and gone a bit Peaky Blinders, …
Brain Man 