Charlotte, Daniel and Alison here (John’s wife and children) AKA The Bairns and our lass. Sadly, our wonderful dad and husband John passed away peacefully with the three of us at his bedside on May 7th 2023. John loved writing his blog and updating people on his battle. Despite being given 12 months to live …
Author Archives: brainman2019
I know I know
Yes I did say this is going to be be my last post, but I am still here and enjoying every day. It has been two weeks since I left hospital after being told there is no further treatment and yes there are good days and bad today. The majority with the help of my …
Addendum
I knew I said that was was the last blog, but how can I keep my dry quips from my all. It has been a week yesterday since I finished with the NHS as fingers crossed I feel alright from a slight change in my voice, bit of a setback, (sound like Quentin Chrisp, with …
Battle number 1
We are now heading into the Spartans Battle of Thermopylae and as per my previous blog post the writing is on the wall. Unfortunately the commander (yours truly) received the news that hospice care is now the only thing required and chemo has ceased to be an option so I am in palliative care. Support …
Continuation
I hope everyone is OK. Apologies for the lack of communication bit up and down down affair since my last post. The consultant has decided to reduce my current chemo treatment from 10 days to 3 days over a sixth week rotation as the side effects were affecting me with as I said with the …
Happy 2023
Happy New Year fellow downhillers. I hope everyone had a fantastic Christmas and New year. I enjoyed a lovely time over Christmas, relaxing with my family. On 29th December I had an MRI and saw my consultant yesterday for the results. It wasn’t the best of news. The consultant informed me I have further progression. …
Merry Christmas
Festive greetings to you all. I hope you are all OK? I think about individuals we have lost this year and the rest of us still battling it. Cancer is a sh1t. I was supposed to have my chemo a few days later but it was decided by my medical team that the chemotherapy drug …
The life of Brian
Apologies for the delay in posting. I hope everyone is OK 👌. So what has happened to me since the last chapter. I have spent more time in A&E for two further transfusions as I was struggling for breath again. Chemo has been postponed as the consultant and nurse agreed the chemotherapy was affecting my …
What point am I at
Good morning from a country in political turmoil. Welcome to Anarchy in the UK. (Great song from a great era). So how is my saga going. Well I have my meeting with my consultant later on today, fingers crossed 🤞🏾 on what he says. However I have recently been struggling for breath so rang the …
Sixth and Hopefully last chemo
Had to ring the chemo unit once again yesterday morning as I had bloods taken on Friday and no update. Once more I had the results so was a waiting game on my behalf. My HB was 91 and my levels were 213 so was unsure if was going ahead or not. The answer was …
Brain Man 