2 weeks ago I was clear in my mind what was going on regarding my ongoing treatment. Now I am befuddled. The consultant has taken me off dexamethazone and put me on hydrocortisone, one tablet in the morning and half a tablet on an evening. I have been on it for about a week. He had mentioned he was letting my doctor know a while ago but no timescale, so was a bit of a kick when he rang to say they were changing my meds over. I had not heard from the doctor so put it to back of head. I had to go to the hospital chemist to collect.
I was also supposed to have my MRI yesterday but on the 9th September I was contacted by the hospital 🏥 to be informed the scan was going to be rescheduled due to staffing shortages and it would be at a Nuffield hospital instead, no estimate of when only that I would receive a letter confirming the new appointment date. So far no news.
The consultant then rang 2 days ago to enquire how I was getting on with the new medication đź’Š and to also say I needed a blood test which is booked for next Monday. Deep joy. I have a telephone consultation with my nurse on 22nd of this month and a phone consultation with my consultant on 29th of this month also. Quite a busy month.
On the plus side our lass, myself and my sister in law and her husband are going to Bristol at the end of this month to do the Only Fools and Horses tour. Lovely Jubilee. If you haven’t seen it, I recommend you do.
I would like to thank our lasses family as they are doing a half marathon in aid of the brain tumour charity for further research. One of my sister in laws is organising it. Check it out if you can please. http://Justgiving.com/fundraising/christina-kelly9
I hope everyone is OK and not letting the negativity in the world getting them down. Life is a roller coaster you just have to ride it, as they say.
Brain Man 