Unbelievable

You could not write this fellow warriors.

A letter arrived from the QE hospital on Monday. My angiogram was done in September if you remember, and yet only now are they advising of an appointment for 9th December (the day before we go to York)…which only came about as our lass has been calling and leaving messages for the past month!!

They wrote, and I quote: “I gather you have been in contact about the results of your recent CT heart scan. It shows diffuse but mainly mild furring up of your coronary arteries. There is an area in the mid part of one your vessels which might be causing some restriction to blood flow, which requires further investigation. We are arranging for you to be seen in one of the cardiology outpatient departments.

“For the moment you are on effective treatment with your Simvastatin and Ramipril.”

Erm…My GP took me off the statin over a month ago as there was a problem with my liver so clearly records haven’t been updated. The hospital has also suggested I start taking aspirin.

Our lass then decided to contact our GP to explain the situation and mentioned I had recently had a blood test to check my platelet levels and still hadn’t received the results, hence why I hadn’t started the next round of chemo yet. My platelets need to increase before starting on a stronger dose. The doctor checked the system and said there was no trace of my latest blood test results and as a result I couldnt begin to take aspirin as it can thin the blood and be dangerous with low platelet levels. Because of this she also said no to taking the statin. Had we not mentioned this I may have began taking the aspirin and faced serious consequences later down the line!

The GP requested I had another blood test on wednesday before meeting with my consultant that morning. What a to do. Seems like there’s been a lot of miscommunication and lack of communication between hospitals and GP’s…not helpful when you’ve got a lot on your plate.

So, that morning I had my meeting with a consultant but not my usual one as she is retiring. I started my chemo treatment the next day and the consultant is going to write to the QE to say they are not putting me on the statin.

My chemo dosage has been doubled so 5 days on and 3 weeks off with sickness tablets twice a day.

I have been feeling sleepy the last couple of days and out of sorts and cannot put my finger on why. My knees have started trembling after I get up after sitting down for a period of time, but overall apart from that I feel ok.

I will keep you all updated.