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I have a CT scan for my heart booked for the middle of September and an appointment with the oncologist on 14 August at 2 separate hospitals.

My nights are still punctuated by waking at 3-3:30am. Are others going through this? Please let me know.

I am finding myself becoming irrational and angry whereas before I let things wash over me. Small niggly things become escalated in my mind to the point of obsession. My loving wife says the medication I am on causes these side effects. I am currently on, amongst others, Dexamethasone and Levetiracetam. Is anyone else experiencing these side effects?

I am trying to focus my mind on other things and not dwell on small insignificant matters that are not important.

Keep you posted on my next step.

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5 Comments

  1. Hi I’ve just had surgery Monday 4th, now at home. I’m on the same medication and struggling to sleep past 2.30am without waking for long periods. As it’s so soon from the op , I can’t be certain it’s down to medication. I am waiting to hear next week what I’ve got.

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    1. Fingers crossed for you. My op was 16th last month so been on the meds longer. My wife and bairns think it is the medication I have an appointment with the oncologist on Wednesday to discuss this further.

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  2. Hi, I had meningitis partial removal in March 2017,was on Levetiracetam for 9 months, seem to wake every morning between 3&4, I also struggle with the niggly little things, big problems I can cope with! Mood swings are also bad from chilled to WTF IN A NANO second. Being in crowded and noisy places are a big trigger, have you contacted headway they help a lot and also you can apply for a brain injury card should these episodes happen whilst in public places,

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    1. Thank you for that did not know about headway but sounds like a good idea. Am now waking up about 4 to 5 times a night. Get the mood shifts in double quick time. Totally out of my normal character.

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